Walking through Barnes and Noble today and I pass by a section called Special Needs Children. I didn’t even know they had a section like that. Scanning the shelves for something that might be interesting or insightful, I find this book. I’d been wanting to read it for a while now. I’ve followed the author’s blog for a few years and really love her writing.
I grabbed the book and found a corner of a windowsill to camp out for a bit and read. After an hour of reading I can hardly keep myself together and not start bawling. I mean, I know I’m already crazy, but I don’t need perfect strangers to know it too.
This book is amazing. I am now inclined to buy it because I must finish it! This momma shares the story of the birth of her second child. A little girl, who is born with Down Syndrome. An amazing, perfect baby and her story and the story of her family and the unknown and the way their lives are changed forever. And I am in awe at the real in her words. I am in awe of their wonderful daughter who will do big things, unlimited and not defined by that extra chromosome.
And that’s the way it should be. I’m a nanny-for two beautiful girls who just turned one over the past few months. They have changed me over the last 9 months. They’ve taught me so much about myself and about how much joy and fun there is in this life. One of these sweet ones was born with a chromosomal deletion. So picking up this book to read today really hit me in a different way. In a way that reminds me of the amazing girl in my life-who daily shows me what life is really about.
Guys-she is one of the most joyful children you will ever meet. She has this peaceful little smile on her face. She giggles when you pull out her favorite pink doggie and make him say “woof”. She looks deep into your eyes, full of wonder, with her captivating baby blues. She rolls from side to side and is one of the best snugglers ever.
And I am so amazed at her strength. She works so hard at everything. Therapies, eating, you name it. She may not enjoy it, but she does it. And it gives me strength to do things I never thought I could.
She may not be walking yet. Or sitting or some of the other things you'd expect a 1-year-old to do. But she’s getting there in her own time. And she’s just a fun-loving, happy girl. She’s amazing. And I never ever want there to be a day that anyone tells her otherwise. Because she is going to do great things in this life-I know that much.
I may not ever do any big things on this earth. I may not ever have a fancy degree, or an awesome career. And that’s alright. As long as I’ve been there for these girls. Given them the snuggles, read the books and acted silly for them-that’s enough for me. As long as I’ve been there and I’ve told them how much they are loved. That they will do great things and that they are “fearfully and wonderfully made”, then I’ve done all I need to. They are helping to show me the important things in life, the joy in the little things. And I couldn’t be more grateful. Watching them grow has helped shape me into a better person.
I used to tell people what I did as a “job” with a slight bit of shame in my words. Like it wasn’t enough. But after meeting these two girls and their parents, I know that it is quite the opposite. It is more than enough for me and it’s right where I am supposed to be.